September 2020

Dear Friends and Colleagues,

Warm greetings.

I hope you and your loved ones are keeping well during these unprecedented times of the SARS-Cov2 pandemic. The whole world is suffering and Africa is not different with the exception of a delay in the pandemic wave and the apparent fewer numbers of patients which might be a result of limited resources of diagnosis and/or distraction with other persisting health or economic priorities in different regions.

On Wednesday the 4th of March 2020, we received the sad news of losing Prof Chipeta who passed away on Monday 2nd of March 2020.

There is no clear evidence that children with Primary Immunodeficiency (PID) are at great risk of developing COVID-19 or are at greater risk of severe complications from this infection.

Lisbon- From 30th of January to 2nd February 2020

We are very pleased that ASID organisation has actively participated in the delivery of 1st IAPIDS Advanced PID School 2020; jointly organised by the International Alliance for Primary Immunodeficiency Societies (APSID, ASID, CIS, ESID and LASID).

Prof. Aziz Bousfiha – Professor in paediatric immunology/infectious disease- Hassan II University, Casablanca, Morocco; presented results of a conducted survey among African centres regarding feasibility for gene therapy in Africa – IPIC 2019 (Link)

Dr Zainab M Golwala. Co-authors: Prasad Taur, Shraddha Chandak, Purva Kanvinde, Aparna Dalvi, Jacinta Bustamante, Manisha Madkaikar, Mukesh Desai. Department of Immunology, B.J. Wadia Hospital for Children, Mumbai, NIIH, ICMR, Mumbai. (Link)

Dr. Ali Sobh- Lecturer of paediatric immunology in Al Mansoura University, Egypt is presenting an educational power point presentation on patients with XLP1 and XLP2 from diagnosis to treatment (Link).

By: Patricia Karani, HAEi Sub Saharan Representative, Nairobi, Kenya ()

Hereditary Angioedema (HAE) is a rare and disabling condition that runs in families and affects 1 in 10,000 to 50,000 individuals with a mortality rate of about 30%. HAE is a chronic inherited life-threatening condition that mostly manifests in massive swellings occurring spontaneously both externally on the muscle and subcutaneous tissues, and internally in the abdomen and throat. It may initially appear like an allergic or chronic spontaneous angioedema however with further investigations it is identified NOT TO BEmast cell or histamine- mediated allergic reaction and it DOES NOT respond to antihistamines, corticosteroids or epinephrine.

Improving the lives of patients with Primary Immunodeficiencies in Africa by providing sustained access to safe immunoglobulin replacement therapies: collaborative efforts of IPOPI and ASID
(Link)

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