The European Society for Immunodeficiencies (ESID) is a non-profit organization having multiple aims. The main objectives are to facilitate the exchange of ideas and information among doctors, nurses, biomedical investigators, patients and their families concerned with primary immunodeficiency diseases and also to promote research on causes, mechanisms and treatment of these disorders. Recently ESID has initiated an educational program.

The International Union of Immunological Societies is an umbrella organization for many of the regional and national societies of immunology throughout the world.

The Federation of Clinical Immunology Societies (FOCIS) exists to improve human health through immunology by fostering interdisciplinary approaches to both understand and treat immune-based diseases. Initially established as a cross-disciplinary meeting, FOCIS held its first Annual Meeting in 2001. After two successful consecutive meetings, FOCIS incorporated in 2003 as a 501(c)3 organization. Now in its ninth year of existence, FOCIS has 43 Member Societies, representing roughly 60,000 clinician scientists. A Federation of this size provides a voice for clinical immunologists and ultimately strives to improve patient care.

The association of national patient organisations dedicated to improving awareness, access to early diagnosis and optimal treatments for primary immunodeficiency patients worldwide.

INFO4PI is designed for patients and their families, physicians, researchers, government officials, pharmaceutical companies, industry, and the general public to be able to quickly and seamlessly access information on Primary Immunodeficiency diseases and to realize earliest precise diagnoses, appropriate treatments and sometimes cures of the more than 150 different PI diseases affecting more than 10,000,000 children and adults worldwide.