Since 2011, World PI Week raises awareness of the burden of primary immunodeficiency diseases and stimulates efforts to improve the recognition, diagnosis, treatment and the quality of life for people with PI world-wide. World PI Week offers a crucial, visible opportunity to inform and educate health policy-makers, schools and families, and the general public about primary immunodeficiencies to drive the earliest possible diagnosis and optimal treatment. Under the slogan TEST. DIAGNOSE.TREAT, every year around 30 countries participate in World PI Week with an abundance of events taking place around the world. For more information, visit www.worldpiweek.org
On this occasion we encourage African colleagues to seize this opportunity and actively participate in the event. You may choose any of the following suggestions to help in planning the event:
- Organize a community walk, a run, or a bike ride “On the Move for PI”
- Organize the 10 warning signs test to encourage testing by a physician
- Hang posters with the PI Week logo in your clinic’s waiting room, and schools
- Set up education sessions for patients, families, schools and other health care professionals
- Produce and distribute buttons, sports flasks, t-shirts etc. with the PI logo on it
- Send out emails, distribute flyers
- Start a Facebook or Twitter group with a challenge to detect PI
- Start a blog about your PI event and ask colleagues to contribute to it
Be creative about raising awareness of “PI”!